Calgary 360 slides

Here are the slides from the Calgary FSHD 360 meeting on March 16, 2024.

Welcome! What is a 360? What is the CTRN?
Beth Johnston, FSHD Society, and Neil Camarta, FSHD Canada Fdn.

FSHD 101 and overview
Lawrence Korngut, MD, University of Calgary

FSHD genetics and genetic counseling
Gerald Pfeffer, MD PhD, University of Calgary

Physiatry in managing symptoms
Stephanie Plamondon, MD, University of Calgary

Impacting Patient Outcomes using Real-World Evidence
Katie Henley, Canadian Neuromuscular Disease Registry.

Advancing oligonucleotide-based therapies for FSHD
Toshifumi Yokota, PhD, University of Alberta

FSHD: A pediatric perspective
Jean Mah, MD, Cummings School of Medicine

Drug development overview
Gerald Pfeffer, MD PhD

Drug Development overview and trial readiness for FSHD
Lawrence Korngut, MD

Time is Muscle! Canada and Project Mercury
Neil Camarta, FSHD Canada Foundation

Activating the local community
Karen Camarta and Jennie Camarta, Alberta chapter