The Feeling Fit Zoom community hosts twice-monthly Zoom sessions about exercises tailored to the needs of individuals with FSHD. The group hosted recent discussions about the role of personal trainers… Read More »
Working out with a personal trainer
Avidity begins Cohort C enrollment in FORTITUDE trial
Avidity begins Cohort C enrollment in FORTITUDE trial Avidity Biosciences has begun enrollment of Cohort C of the Phase 1/2 FORTITUDE™ clinical trial. Below is Avidity’s letter to the FSHD… Read More »
Fall vaccine guide
Via Ranae Beeker, RN, here’s a clear and concise guide to recommended vaccines, updated for the fall of 2024. For people with neuromuscular conditions, this is especially important because: Falling… Read More »
Mighty micro RNAs
by Yi-Wen Chen, PhD, Children’s National Hospital, Washington DC Many Nobel Prize-winning discoveries have contributed to the advancement of research and treatments for facioscapulohumeral muscular dystrophy (FSHD), and the work… Read More »
Are you prepared for an emergency?
The catastrophic impact of Hurricane Helene is a sobering reminder of the importance of being prepared for disasters and the special care people with disabilities need to take. One handy… Read More »