The Feeling Fit Zoom community hosts twice-monthly Zoom sessions about exercises tailored to the needs of individuals with FSHD. The group hosted recent discussions about the role of personal trainers and how they differ from physical therapists. Physical therapists are licensed medical practitioners. One typically needs a doctor to prescribe PT, and the cost is (or should be) covered by health insurance. Physical therapists follow medical guidelines to address patients’ issues. Personal trainers also have extensive knowledge about the musculoskeletal system and training strategies, but a doctor’s prescription is not required, and their services are not reimbursed by health insurance.
The key factor in developing a successful relationship with a therapist or trainer is interpersonal chemistry: Do they listen to you and make the effort to understand FSHD, how it is affecting you, and what your goals are? Do you trust them to keep you safe while also motivating you to do the work?
Recently, Chris Haven, from the Pacific Northwest chapter, shared her experiences working out with Alex Walker, a personal trainer and strength coach. Over a number of years, her sessions have helped her regain significant strength and function, she says. In this recorded session, Chris shares videos illustrating their training sessions and discusses her FSHD and fitness journey.
Alex unfortunately couldn’t join the live session, but here is a little bit about him, in his words: “I have been weightlifting most of my life and started my personal training business 12 years ago while also coaching football and lacrosse for several years. As a USAW certified performance coach, I can teach and refine weightlifting techniques, assess mobility, effectively communicate with my clients, and implement optimum training plans. This combined with being also a Bioforce certified conditioning coach, allows me to truly assess the needs of my clients. Over the past several years, I have become a rehabilitation specialist working with FSHD muscular dystrophy clients increasing their functional strength and improving their daily lives.”
Learn more about Coach Alex Walker at his website.
For people living with FSHD who are interested in exercise and fitness, we meet on the 2nd and 4th Thursday of every month at 12:00 pm (noon) U.S. Eastern Time. Join the group. Come dressed for exercise and have on hand any safety and assistive devices you need. Not every exercise is appropriate or safe for every individual, so please use your best judgement and consult your health care provider.
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