By June Kinoshita, FSHD Society The pharmaceutical industry is showing a growing interest in developing therapies for facioscapulohumeral muscular dystrophy (FSHD), a rare genetic disorder affecting an estimated one million… Read More »
Big pharmas show growing interest in FSHD
A passion for adventure and advocacy
Don Burke recently completed a remarkable 93-day road trip, covering 28,000 miles across 36 states and four Canadian provinces in his electric vehicle. This journey is part of why he… Read More »
Speaking honestly
Originally from the Midwest, Chelsea Moeller now calls Maine home, where she lives with her husband, daughter, and their 125-pound Newfoundland, Del. The close-knit community of her town makes it… Read More »
A personal mission to advance research
Amanda Hill, a Colorado native, lives with her husband, Justin, and their two dogs in the Denver area. Together, they share a love for travel, great food, and discovering new… Read More »
Science with a heart
Lucienne Ronco’s journey is a testament to the power of curiosity and compassion. With roots in the Pocono Mountains of Pennsylvania, she embarked on a path that would lead her… Read More »