Carolyn Lloyd’s journey as chief development officer of the FSHD Society reflects her lifelong commitment to service and empathy for those affected by chronic illness. Her role as a caregiver for her mother, who had multiple sclerosis, taught her firsthand about the complexities of chronic conditions. “I understand the challenges not just for the individual, but for the whole family,” she says, a perspective that grounds her work.
Her career in development has spanned healthcare, higher education, and rare disease, giving her a rich foundation of experience. “I’ve always been intentional about learning every aspect of development to understand how to make the biggest impact,” Carolyn reflects. Each step along her career path – from events and annual funding to corporate relations – has deepened her skill set and passion for supporting families. For Carolyn, development is about connecting people’s generosity with opportunities to create change. “It’s about fulfilling people’s desire to help,” she says.
Inspired by the FSHD community’s strength and support for one another, Carolyn strives to make sure no one feels alone on their journey. “Being around these families is incredibly moving,” she says. “I want everyone who supports this cause to know they’re part of that.”
Now based in Kansas City with her husband, Carolyn enjoys live music, especially jazz, along with hiking, playing the piano, and creating art.
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