Amanda Hill, a Colorado native, lives with her husband, Justin, and their two dogs in the Denver area. Together, they share a love for travel, great food, and discovering new spots in their local dining scene. Professionally, Amanda has built a career in biomedical research, where her knack for project management led her to roles overseeing clinical studies and supporting collaborative research efforts.
After Justin’s FSHD diagnosis, Amanda sought out the FSHD Society and soon became a chapter leader for Colorado, where she helped connect local families and build a supportive community. “Being a chapter leader gave me the chance to connect with people in the same boat,” Amanda shares.
Now, as the Society’s senior director of research and care, Amanda plays an integral role in projects like the BetterLife FSHD platform. “We’re still in the early days, learning the system and building out its potential, but the response has been incredible,” she says, excited about the impact of BetterLife in connecting patient data to research. With her mix of research expertise and personal commitment, Amanda is dedicated to driving meaningful progress for the FSHD community.
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