Weighing risks and benefits We are often asked about whether people with FSHD can safely take statins. Statins are the most widely prescribed drug in the world and are used… Read More »
Statins (cholesterol-lowering drugs) and muscular dystrophy
From the Wayback Machine, 2010
Who hasn’t worried that when they clean out the attic, they’ll inadvertently send a precious heirloom to the trash heap? Sometimes a good Samaritan finds the treasure and returns it…. Read More »
FSHD Society partnering in €21 Million project
Aiming to accelerate disease treatment and care for rare diseases See PaLaDIn Launch Press Release The FSHD Society is embarking on an exciting international collaboration to speed up the development… Read More »
Women’s health with Dr. Loralei Thornberg
In December, our Women on Wellness Zoom group hosted Loralei Thornberg, MD, an ob/gyn at the University of Rochester. She is a rock star! She addressed issues in women’s health… Read More »
The FSHD Navigator
So you don’t have to journey by yourself by Anna Gilmore, FSHD Society At the FSHD Society, the families we serve always come first. With that in mind, we are… Read More »