A Day of Impact in Washington, D.C. On May 8th, the FSHD Society held its first-ever Day on Capitol Hill in Washington, D.C. This milestone in our advocacy efforts brought… Read More »
Advocating for Change on Capitol Hill
Avidity shares interim data from its FORTITUDE trial
“Unprecedented” and “consistent” reductions in DUX4 activity along with improvements in strength and function by June Kinoshita, FSHD Society Avidity Biosciences, Inc., a San Diego-based biopharmaceutical company, announced this Wednesday,… Read More »
Teachable moments
How do we deal with uncertainty in a positive, productive manner? from the Women on Wellness group. Adapted from notes by Ranae Beeker, RN At our meeting in May, our… Read More »
Nerve mobility and pain
Our May Feeling Fit Zoom group featured Arielle Levy, a physical therapist from Re+Active Physical Therapy founded by Julie Hershberg (a legend in the FSHD community). Following the introductory information… Read More »
FSHD Cycling Team to ride again
George Pollock is tackling the Triple Bypass this July Click HERE to donate to George’s ride Audacious in its ambition and breathtaking in its logical execution, Team FSHD Cycling first… Read More »