A space-age solution for eating soup by Amy Bekier, San Diego, California Hello, my fellow slurpy, sloppy FSHD superhero eaters! For many of us with FSHD, as our hands, wrists,… Read More »
It’s alive! It’s alive!
Muscle loss with Ozempic® and similar drugs
What’s the risk to people with muscular dystrophy? by Rich Holmes, Sandwich, Massachusetts Heard about Ozempic, Mounjaro®, and related drugs and wonder if one might help you lose weight? That’s… Read More »
FSHD is not for cowards
There was plenty of ingenuity and grit on display in Denver by June Kinoshita, FSHD Society Many scientists who work on FSHD spend their days bent over test tubes and… Read More »
Better Nutrition for FSHD
The foods you eat impact your disease and can support improved muscle function in combination with supplementation and exercise. Using real FSHD patient food records, we will explore the journey… Read More »
Ten things I wish someone had told me…
…when I was first diagnosed with FSHD (infantile onset) by Archer Sverdrup, St. Louis, Missouri Progression is unpredictable. Sometimes you may go a year with only minor progression. Sometimes every… Read More »