The MOVE+ study aims to find out. Participants needed! by June Kinoshita, FSHD Society Imagine that you are in an FSHD clinical trial a few years in the future. On… Read More »
Is MRI the “holy grail” for FSHD clinical trials?
Distended belly with FSHD: A surgical reconstruction
…and perhaps refinements yet to be discovered. A first step. by Rick Whitehead, Knoxville, Tennessee I promoted using a double compression abdominal belt for years but was always looking for… Read More »
Marijuana and CBD
The Young Adults Zoom group hosted a session last night (March 18) with guests Claire Szabo-Casella and Lou Casella. They shared their experiences using cannabis-based products to address a variety… Read More »
Vita Therapeutics’ cell-based therapy update
The company switches up its strategy and plans to develop muscle stem cells that evade the immune system by June Kinoshita, FSHD Society Hot off the press is this news… Read More »
Understanding your FSHD
To be able to take charge, you need to listen to your body by Lonwabo Nene, South Africa “I don’t know, but my right arm feels loose. In fact, my… Read More »