This invaluable data is coming to the FSHD Society by Lucienne Ronco, PhD, FSHD Society When a clinical trial fails, what happens to the data? It may include hundreds of… Read More »
The fate of the Fulcrum Phase 3 data
European Neuromuscular Centre Conference on Pediatric FSHD
by Ally Roets, Tucson, Arizona I was honored to attend the Pediatric FSHD European Neuromuscular Centre (ENMC) conference in Amsterdam, Netherlands, this past October. I was invited as a parent… Read More »
Disability, Wildfire & Disaster Resources
The California Wildfires have disrupted life and displaced thousands. Natural disasters and other emergencies greatly impact individuals using power chairs/mobility aides and those who might need assistance to evacuate safely. … Read More »
Fundraise YOUR way
by Kim Shanley, FSHD Society At the FSHD Society, we know that every advance is made possible by the incredible support of people like you. One way you can join… Read More »