The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.
Over the last three decades,. the work of the FSHD Society has accelerated major advancements in the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD.
The FSHD Society is deeply committed to working with ingenuity and integrity. We envision a world free of the suffering caused by FSH Muscular Dystrophy (FSHD.) We will work tirelessly to help our families live a better life until the day a cure is found.
As an organization that not only meets, but exceeds the standards set by all groups that monitor the nonprofit sector, we can be proud of how we ensure donor funds are put to the best possible use in achieving our mission.
We have earned your trust. The FSHD Society earned 14 consecutive 4-star awards from Charity Navigator and in 2021 received a Platinum Seal of Transparency on GuideStar, placing us among the highest-performing U.S. charities. We are also an accredited charity of the Better Business Bureau, a distinction that is very hard to receive.
