Written by Trisha Lynn Sprayberry Las Vegas, Nevada My adventure began late Wednesday night, November 9, 2016. My fiancé, Erin, had dropped me off at the airport. With my suitcase… Read More »
My Boston Adventure: traveling solo with my wheelchair
Accessibility hacks, mobility aids, and tips (Part 2 of 3)
Written by Paul Shay Groton, Massachusetts Grab Bars. In conjunction with my half-steps, we added a conventional grab bar in the doorway to our garage. My wife came up with the… Read More »
Intriguing research on tyrosine kinase inhibition as a potential therapy for FSHD: Sunitinib rescues muscle cells’ ability to develop
Written by Jim Albert Eldersburg, Maryland A cancer drug has been shown to potentially rescue some of the damaging effects of DUX4, the gene implicated in FSH muscular dystrophy…. Read More »
Update on Clinical Trial A083-02: a Phase 2 Clinical Study of ACE-083 in FSHD
The FSH Society has a long history of partnering with biotech and pharmaceutical companies to facilitate recruitment of patients and families for focus groups, provide patient input to clinical outcome… Read More »
The FSH Society Spring Watch is out!
The FSH Society is pleased to announce their Watch Newsletter for Spring 2017. Featured in the Watch are articles about Highlights from the FSH Society’s 2016 International Research Conference (page 1)… Read More »