by Kim Shanley, FSHD Society At the FSHD Society, we know that every advance is made possible by the incredible support of people like you. One way you can join… Read More »
Fundraise YOUR way
Big pharmas show growing interest in FSHD
By June Kinoshita, FSHD Society The pharmaceutical industry is showing a growing interest in developing therapies for facioscapulohumeral muscular dystrophy (FSHD), a rare genetic disorder affecting an estimated one million… Read More »
A passion for adventure and advocacy
Don Burke recently completed a remarkable 93-day road trip, covering 28,000 miles across 36 states and four Canadian provinces in his electric vehicle. This journey is part of why he… Read More »
Speaking honestly
Originally from the Midwest, Chelsea Moeller now calls Maine home, where she lives with her husband, daughter, and their 125-pound Newfoundland, Del. The close-knit community of her town makes it… Read More »
A personal mission to advance research
Amanda Hill, a Colorado native, lives with her husband, Justin, and their two dogs in the Denver area. Together, they share a love for travel, great food, and discovering new… Read More »