Amanda Hill, a Colorado native, lives with her husband, Justin, and their two dogs in the Denver area. Together, they share a love for travel, great food, and discovering new… Read More »
A personal mission to advance research
Science with a heart
Lucienne Ronco’s journey is a testament to the power of curiosity and compassion. With roots in the Pocono Mountains of Pennsylvania, she embarked on a path that would lead her… Read More »
Putting a lifetime of lawyering to work for our community
“I couldn’t do a chin-up to save my life,” Bill Sarraille recalls of his third-grade self. This did not deter him from sports, but he was plagued by mysterious pains… Read More »
Why I exercise
To keep myself fit, ready, and aware of changes in my body by Frank Hanley, Bolivia, North Carolina This is an exciting time for us. The research, clinical trials, and… Read More »
Connecting generosity with purpose
Carolyn Lloyd’s journey as chief development officer of the FSHD Society reflects her lifelong commitment to service and empathy for those affected by chronic illness. Her role as a caregiver… Read More »