Who hasn’t worried that when they clean out the attic, they’ll inadvertently send a precious heirloom to the trash heap? Sometimes a good Samaritan finds the treasure and returns it…. Read More »
From the Wayback Machine, 2010
FSHD Society partnering in €21 Million project
Aiming to accelerate disease treatment and care for rare diseases See PaLaDIn Launch Press Release The FSHD Society is embarking on an exciting international collaboration to speed up the development… Read More »
Women’s health with Dr. Loralei Thornberg
In December, our Women on Wellness Zoom group hosted Loralei Thornberg, MD, an ob/gyn at the University of Rochester. She is a rock star! She addressed issues in women’s health… Read More »
The FSHD Navigator
So you don’t have to journey by yourself by Anna Gilmore, FSHD Society At the FSHD Society, the families we serve always come first. With that in mind, we are… Read More »
FSHD advocate in film about Apple Personal Voice
A new short film directed by Academy Award-winning New Zealand filmmaker Taika Waititi features Dr. Tristram Ingham, a physician and disability advocate living with FSHD. The film was made in… Read More »