The FSH Society connects patients like Katie Ruekert to a community of support so no one has to face this disease alone. We also work closely with thought leaders like… Read More »
We bring people together to fight FSH muscular dystrophy
Video: Molecular therapy for FSH muscular dytrophy
In this FSH Society webinar, Scott Q. Harper, PhD, of Nationwide Children’s Research Institute describes FSHD genetics and explains how gene and molecular therapy could be used to block the… Read More »
Duchenne/Becker and FSH Muscular Dystrophies Receive ICD-10 Codes
Parent Project Muscular Dystrophy, FSH Society Lead Effort to Obtain Critical Diagnostic Classification Standard HACKENSACK, N.J., Dec. 7, 2017 /PRNewswire-USNewswire/ — Parent Project Muscular Dystrophy (PPMD), along with collaborators the… Read More »
Recent FSHD research publications
Notable findings and advances from the past six months by DANIEL PAUL PEREZ Chief Science Officer, FSH Society Asterisk denotes FSH Society funding acknowledged in paper. “Conservation and innovation in… Read More »
Charity Navigator rates FSH Society as “Exceptional”
The FSH Society has earned its tenth consecutive 4-star Charity Navigator rating! According to Michael Thatcher, President & CEO of Charity Navigator, “Only 1% of the charities we rate have… Read More »