Check out this amazing video of Team FSHD Cycling’s epic race this summer. Huge thank you to Emily Pollock for creating this priceless documentary. Warning: Have a box of tissues… Read More »
Relive Team FSHD Cycling’s Race Across America!
FSHD Canada awards $20K for FSH Society research grant
The FSH Society is pleased to announce that it has received a grant of $20,000 from the FSHD Canada Foundation in support of an exciting, treatment-focused project, “Developing LNA-based therapy… Read More »
Forget Me Knot Fundraiser, Extended until September 15th!!
UPDATED! Thank you to everyone who donated to Michelle’s Forget Me Knot fundraising campaign. We didn’t quite reach our $50,000 goal, so Michelle has extended the deadline to donate to September 15th!!… Read More »
Bone Health and FSHD
by JUNE KINOSHITA, FSH Society Muscle plays an important role in bone health, and diseases such as Duchenne muscular dystrophy have been linked to low bone mineral density (BMD), abnormal bone… Read More »
A Segway for mobility
by TOM THOMPSON, Charlotte, North Carolina The first time I ever saw a Segway I immediately recognized it as something that could possibly help my mobility. My FSHD had progressed to… Read More »