We are pleased to share slides and videos from our conference held in San Francisco on July 15, 2017. Thank you to our wonderful speakers and to our sponsor Acceleron… Read More »
Bay Area FSHD Family Day Conference Videos and Slides
Tips for air travel with a power wheelchair
Howard Chabner, a lawyer, disabilities advocate, and long-time FSH Society Board member, loves to travel internationally and has much experience with addressing the innumerable obstacles that impeded disabled travelers. He… Read More »
2017 Los Angeles Festive Evening Fundraiser
Dear Friends of the Ghostly Gala to Vanish FSHD, Thanks to your enthusiastic and generous support, the Ghostly Gala has quickly become a beloved Halloween event, whose impact is being… Read More »
Radio Show – Steven Blier, musician extraordinaire
LISTEN LIVE ON WEDNESDAY, SEPTEMBER 27, 2017, HERE. A podcast of the interview will be available at this link. This month’s radio show guest is Steven Blier, a pianist and… Read More »
FSH Society Board of Directors Names Mark A. Stone as Next Chief Executive Officer
Co-founder and Former CEO Daniel Paul Perez to continue with the FSH Society as Chief Science Officer LEXINGTON, Massachusetts – William R. Lewis Sr. M.D., chairman of the Board of… Read More »