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The FSH Society’s Los Angeles FSHD Family Conference will be held on October 21, 2018, at Santa Monica College’s Bundy Campus. Join patients, families, and top researchers and clinicians for… Read More »
FSHD Family Day Conference in Los Angeles
Ask the Physical Therapist series
Our blog series of Q&As with physical therapist Julie Hershberg contain so many useful tips that we thought it would be helpful to index them all in one place. Bookmark… Read More »
Bay Area FSHD Family Day Conference Videos and Slides
We are pleased to share slides and videos from our conference held in San Francisco on July 15, 2017. Thank you to our wonderful speakers and to our sponsor Acceleron… Read More »
Tips for air travel with a power wheelchair
Howard Chabner, a lawyer, disabilities advocate, and long-time FSH Society Board member, loves to travel internationally and has much experience with addressing the innumerable obstacles that impeded disabled travelers. He… Read More »
2017 Los Angeles Festive Evening Fundraiser
Dear Friends of the Ghostly Gala to Vanish FSHD, Thanks to your enthusiastic and generous support, the Ghostly Gala has quickly become a beloved Halloween event, whose impact is being… Read More »