Readers of FSH Watch may remember Katie Ruekert’s personal story about how she struggled to come to terms with her diagnosis of FSH muscular dystrophy, and how her journey eventually… Read More »
Award-winning author Lisa Reinicke author lends her support
FSH Society Talk Radio: Interview with Dr. Charis Himeda
Wednesday August 30, 2017 9:00 pm EST/8:00 pm CST Tune in live or listen to the post-show recorded podcast HERE. We’re excited to welcome Charis L. Himeda, PhD, Research Assistant Professor… Read More »
2017 Festive Evening Stay-at-Home Campaign
The FSH Society Festive Evening Concert Committee will miss seeing you in person this year. Why we do what we do. FSHD can rob you of your ability to smile. Weaken… Read More »
FSH Society awards over $600K for new research
The FSH Society has awarded grants totaling $616,467 to seven research projects submitted for the February 2017 grant cycle. This brings total research funding by the Society for 2017 to… Read More »
In memorium: Richard Lefebvre, former FSH Society Board member
Former FSH Society board member Dick “Hap” Lefebvre passed away this past Saturday at the age of 70 from complications of FSH muscular dystrophy. For those wishing to reach out… Read More »