DONATE TO HELP TEAM FSHD CYCLING’S CROSS ITS FUNDRAISING FINISH LINE!! We are more proud than we can say to have Team FSHD Cycling embark today on the 3,000-mile Race… Read More »
Team FSHD Cycling’s RAAM has begun!
Muscle Activation Exercises
Lynnette Rasmussen OTRL provides detailed, hands-on demonstrations of a variety of gentle exercises targeting specific muscles. Developed in collaboration with an FSH muscular dystrophy patient, these exercises demonstrate principles that… Read More »
FSH Society Talk Radio – A chat with Chris Carrino, voice of the Brooklyn Nets
Wednesday, May 31, 2017. 10:00 pm EST / 9:00 pm CST. LISTEN HERE! Chris is the voice of the NBA’s Brooklyn Nets and as founder of the Chris Carrino Foundation,… Read More »
From our CEO, a call to FSHD researchers
Dear Research Colleagues, As you know, the FSH Society constantly encourages the National Institutes of Health (NIH) to increase the number of grants and the number of dollars it funds… Read More »
Susan Barclay’s 50th Birthday Challenge #Whistle4FSH
#Whistle4FSH has one goal—to find treatments for FSHD, the most prevalent type of muscular dystrophy, caused by a genetic mutation on chromosome 4. People with FSHD can not only lose… Read More »