The FSH Society’s 2016 Patient Connect conference was held on Friday, November 11, (noon to 5:00PM) and Saturday, November 12, 2016 (9:00-5:00 PM) at the Westin Copley Place Hotel in Boston, Massachusetts…. Read More »
2016 FSHD Patient Connect Conference
Acceleron’s ACE-083 clinical trial is now open
Cambridge, Massachusetts-based Acceleron Pharma, Inc., is now recruiting adults with FSH muscular dystrophy for a Phase 2 clinical trial of ACE-083. The initial trial site is located in St. Louis,… Read More »
Living with FSHD: Katy Kat in the Hat (Video)
Ellen Feldman, filmmaker, created this documentary about a woman she met who has FSH muscular dystrophy. “Katy Kat in the Hat is a story about a woman who defies all… Read More »
FSH Society receives its 9th 4-star Charity Navigator rating
We just received news that the FSH Society has earned its ninth consecutive 4-star Charity Navigator rating! We’re now in the top 1% of all U.S. charities! According to Michael… Read More »
Carden and Spencer Wyckoff Share Their Appalachian Adventure with WSB-TV Atlanta!
Last month, FSH Society Ambassadors Carden and Spencer Wyckoff hiked through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. You can now watch… Read More »