The program agendas for our FSHD Connect conferences are now available to download. Please click on the links provided below. We thank our generous sponsors for their support! FSHD Research… Read More »
FSHD Connect conference agendas now available!
Tune in to our Ghostly Gala 2 Livestream
On Sunday, October 30th, Griff Entertainment will provide the first-ever livestream for the FSH Society’s second annual Ghostly Gala to Vanish FSHD. The gala will be held at the Cicada… Read More »
Ghostly Gala posts an awesome trailer
Hot off the press! Our celebrity champion Max Adler has confirmed that he is attending. Comedian Wendy Liebman will host the evening. Get out your powdered wigs, unitards, and sparkle!… Read More »
aTyr Pharma Receives FDA Fast Track Designation for Resolaris™
— First Reported Fast Track Designation for a FSHD Treatment — SAN DIEGO, Oct. 24, 2016 /PRNewswire/ — aTyr Pharma, Inc. (Nasdaq: LIFE), a biotherapeutics company engaged in the discovery and… Read More »
Acceleron to host webcast on FSHD clinical trial
(Via BusinessWire.) Acceleron Pharma Inc., a clinical stage biopharmaceutical company focused on the discovery, development and commercialization of innovative therapeutics to treat serious and rare diseases, today announced that it… Read More »