To be able to take charge, you need to listen to your body by Lonwabo Nene, South Africa “I don’t know, but my right arm feels loose. In fact, my… Read More »
Understanding your FSHD
Every person’s effort takes us closer to the tipping point
Stories from our 2024 Volunteer Leadership Summit In early February, 75 of our Volunteer Leaders from across the US and Canada met in-person at the Chicago Airport Hilton or virtually… Read More »
Statins (cholesterol-lowering drugs) and muscular dystrophy
Weighing risks and benefits We are often asked about whether people with FSHD can safely take statins. Statins are the most widely prescribed drug in the world and are used… Read More »
From the Wayback Machine, 2010
Who hasn’t worried that when they clean out the attic, they’ll inadvertently send a precious heirloom to the trash heap? Sometimes a good Samaritan finds the treasure and returns it…. Read More »
FSHD Society partnering in €21 Million project
Aiming to accelerate disease treatment and care for rare diseases See PaLaDIn Launch Press Release The FSHD Society is embarking on an exciting international collaboration to speed up the development… Read More »