Register at the following links: Research Connect Patient Connect CureFSHD Gala This year, for the first time, we have combined our two signature meetings into FSHD Connect, a single, three-day… Read More »
2016 FSHD Connect Conference
New member of our team
Beth Johnston has joined the FSH Society in August of 2016 as Development Officer. She will work with the Executive Director and the leadership team to create, execute and grow the… Read More »
New FSHD biotech launched with $55 million
From BusinessWire CAMBRIDGE, Mass.–(BUSINESS WIRE)–Third Rock Ventures, LLC today announced the launch of Fulcrum Therapeutics, a company focused on unlocking gene control mechanisms to develop small molecule therapies. Fulcrum will… Read More »
Help put FSHD on TV!
FSH Society public service announcements are available for television broadcast, but we need your help to get stations to actually air them. When stations hear from local viewers, they can be… Read More »
Lake Party Thank You Party – Matching Gift Challenge!
This year marks the final year that Michelle and Dave Mackay will have the Lake Party at their Michigan home, as it has been sold. They will host a thank you party at… Read More »