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Bone health for FSHD patients
Carla Grosmann, MD, of the Kennedy Krieger Institute and University of California San Diego gave this talk about bone health at the FSH Society’s Mid-Atlantic patient network meeting on June… Read More »
Steven Blier and Julia Bullock Perform to Benefit Muscular Dystrophy Research
We’re excited to announce the second annual benefit concert, “Songs in the Key of Steven Blier,” on Friday, July 17 at the Marines’ Memorial Club in San Francisco. The evening… Read More »
#FSHDSelfies campaign wins award
We have some good news to share. Last night members of SHIFT Communications, our pro bono PR/Marketing partner, attended the annual Publicity Club of New England’s Bell Ringer awards. The Publicity… Read More »
Lake Party to raise funds for FSH Society
Join FSH Society Board member Michelle Mackay and her husband David on July 11 for their annual Lake Party fundraiser at their home in Hickory Corners, Michigan. Michelle is one of the… Read More »