This September 6, Doug Craig, a retired scientist who has lived with FSHD since his teenage years, will be embarking on a 290-mile journey from New York City’s Columbus Circle… Read More »
Doug & Gracie NYC to DC needs your support!
Report from Sacramento
By Bill Lewis III, MD A new support group met for the first time in Sacramento, CA on August 19th at a centrally located restaurant. We had 10 attendees from the… Read More »
2015 Spring/Summer issue of FSH Watch is out!
The latest issue of our FSH Watch newsletter has just come out. You can download it here. Highlights include: The first evidence-based FSHD care guideline has been published. What is it? How… Read More »
International facioscapulohumeral muscular dystrophy research conference in Boston
The FSH Society’s 2015 Facioscapulohumeral Muscular Dystrophy (FSHD) International Research Consortium and Planning Meeting will convene in Boston this year, on October 5-6. This meeting is the largest annual forum… Read More »
Recently published research
The publications listed below were supported by the FSH Society in the form of research fellowships and travel grants. We thank our many donors for providing the funding to advance… Read More »