We are deeply saddened to report that Bob Smith, a member of the FSH Society’s Board of Directors, passed away last night following a brief illness. Bob was an attorney practicing… Read More »
In Memorium: Remembering Robert F. Smith, J.D., long-time FSH Society Board member
Setting a new record in our funding of research
In the first half of 2015, the FSH Society has awarded $485,840 in grants to new projects in facioscapulohumeral muscular dystrophy research. These projects were among a competitive group that… Read More »
FSH Society’s Daniel Perez presents to MDCC
Daniel Perez, president and CEO of the FSH Society, represented the FSHD community at last week’s meeting of the Muscular Dystrophy Coordinating Committee (MDCC). The day-long meeting was held on… Read More »
How my progressive disease taught me that it’s okay to be human
By Kristin Duquette My body constantly changes and at times, I feel like there’s nothing I can do about it. Every time I lose another piece of mobility, my mind… Read More »
Share to be Aware: FSH Society Launches #CureFSHD Campaign
The FSH Society is excited to announce that today we will be kicking off our new campaign, #CureFSHD! The purpose of the campaign is to spread awareness and educate people… Read More »