$263,502 awarded Since 1998, the FSH Society has transformed FSHD research by providing grants for vital start-up funding for investigators in FSHD and research projects on FSHD. The milestones and insights gained… Read More »
FSH Society grant awards for February 2015 cycle
The FSH Society is here for you
Are you there for the FSH Society? Please, if you haven’t done so already, click on the JOIN button and become part of the world’s largest network of FSHD patients,… Read More »
Bone health for FSHD patients
Carla Grosmann, MD, of the Kennedy Krieger Institute and University of California San Diego gave this talk about bone health at the FSH Society’s Mid-Atlantic patient network meeting on June… Read More »
Steven Blier and Julia Bullock Perform to Benefit Muscular Dystrophy Research
We’re excited to announce the second annual benefit concert, “Songs in the Key of Steven Blier,” on Friday, July 17 at the Marines’ Memorial Club in San Francisco. The evening… Read More »
#FSHDSelfies campaign wins award
We have some good news to share. Last night members of SHIFT Communications, our pro bono PR/Marketing partner, attended the annual Publicity Club of New England’s Bell Ringer awards. The Publicity… Read More »