2014 FSHD Connect, the FSH Society’s biennial international conference of patients, families, researchers and clinicians, was held in Boston on August 16-17th. Over 200 people attended, the largest such gathering to… Read More »
2014 FSHD Connect attracts over 200 people
“Songs in the Key of Steven Blier” wows San Francisco
[ngg_images gallery_ids=”6″ display_type=”photocrati-nextgen_basic_slideshow”] We barely have words to express how grateful we are to everyone who contributed so much spirit and hard work to make our first-ever San Francisco gala, “Songs in the… Read More »
FSH Watch Winter 2012
Highlights include: FSH Society Annual Donor Report Grant awards for August 2011 FSH Society 2012 International Patient/Researcher Network Meeting Still Walking by Bill Moss, an “inspirational, moving, blunt and at… Read More »
#FSHDselfies Shoot a Selfie, Raise Awareness
selfie noun, informal – a photograph that one has taken of oneself, typically one taken with a smartphone or webcam and uploaded to a social media website – Oxford Dictionary Our national… Read More »
FSHD Connect Scholarship Program
Great news! We’ve been able to set up a scholarship fund to cover the registration fees for FSHD patients and family members who need financial assistance to attend this year’s… Read More »