Research project initiated in 2003 under a FSH Society Marjorie Bronfman Fellowship Grant yields a new transgenic mouse model with Human DUX4 D4Z4 advancing clinical trials readiness efforts and our… Read More »
Marjorie Bronfman Fellowship Grant yields a new transgenic mouse model with Human DUX4 D4Z4 advancing clinical trials readiness efforts
FSH Society Submits FY2014 Written Testimony U.S. House Appropriations Subcommittee on LHHSE for funding NIH and Research on FSHD at a level of $12 million annually
FSH Society Submits FY2014 Written Testimony U.S. House Appropriations Subcommittee on LHHSE for funding NIH and Research on FSHD at a level of $12 million annually More / Testimony in… Read More »
Stanford Hospital & Clinic’s Neuromuscular Program’s Open House
FSHD patients and families are invited to attend the Stanford Hospital & Clinic’s Neuromuscular Program’s open house, taking place April 10, from 4:30 PM to 7:00 PM in the 2nd… Read More »
FSH Watch Winter 2013
Highlights include: Genetic Source of FSHD Type 2 pinpointed and outlined. FSHD patient climbs for hours through the mountains to visit gorillas in Uganda. FSH Society funds advances in understanding… Read More »
The Centers for Disease Control Spotlights FSH Muscular Dystrophy
Boston, MA / February 11, 2013 At the age of 28, Kevin Kirby was diagnosed with a disease that most people have never heard of. Called Facioscapulohumeral Muscular Dystrophy, or… Read More »