This is a sponsored blog post by UCLA Health as part of its 2021 Los Angeles Walk & Roll Platinum Sponsorship Partnership. If you ask a patient or their family… Read More »
UCLA continues commitment to find treatments for FSHD with M.O.V.E. Study
Genetic testing for FSHD in Asia
Article contributed by Pangenia. About Pangenia Genomics Pangenia is one of the leading diagnostic companies in Hong Kong with 15 years of experience in diagnostics and targeted treatment of hereditary… Read More »
Sleep and pain, the hidden connection
In this presentation, Heloise Hoffmann shares her study focusing on understanding the relationship between FSHD, sleep, and pain. Sleep is essential, but it could be affected by FSHD. To… Read More »
Dynamic Sitting – exercising in a seated position
Here are Dr. Nikia Stinson’s slides (ppt) Equipment List (downloadable) All of these are available on Amazon. Com and other online shopping sites.
I still have joy in my life
by Jean Devenport, Melbourne Beach, Florida Like many of you living with muscular dystrophy, I long knew something was wrong, but I was not sure what it was. Most of… Read More »