by Rick Whitehead, Knoxville, Tennessee I’d like to share one of the most valuable tips I’ve had for dealing with “FSHD belly.” My abdominal core muscles had become like weak… Read More »
Compression belts help me look buff again
GivingTuesday Radiothon is December 1
#GivingTuesday is a global day of giving fueled by the power of social media and collaboration. This year, it falls onDecember 1, and we are marking the day by holding… Read More »
Get a MOVE on!
by June Kinoshita, FSHD Society When doctors diagnose individuals with a progressive condition like FSH muscular dystrophy (FSHD), they’re often asked, What does the future look like? Will I need… Read More »
Time equals lives. The parent’s voice
by Julie When you are a child, you feel like you have all the time in the world. When you become a parent, you realize this isn’t true. Your own… Read More »
FSHD Society releases Voice of the Patient Report
Landmark report captures compelling testimony by patients and family members about the severity of disease symptoms and urgent need for treatment LEXINGTON, MASS. (PRWEB) NOVEMBER 12, 2020 The FSHD Society has… Read More »