Building an early-onset community Meet Archer Sverdrup, a St. Louis native with a love for power soccer, arts and crafts, and hanging out with their loyal German Shepherd, Blue. Archer… Read More »
Changemaker: Archer Sverdrup
Teaching medical students is therapeutic
by Brian Jude Loiacono I have been volunteering to teach second-year neurology students about Facioscapulohumeral Muscular Dystrophy (FSHD) at the Renaissance School of Medicine at Stony Brook University. This is… Read More »
Working out with a personal trainer
The Feeling Fit Zoom community hosts twice-monthly Zoom sessions about exercises tailored to the needs of individuals with FSHD. The group hosted recent discussions about the role of personal trainers… Read More »
Fall vaccine guide
Via Ranae Beeker, RN, here’s a clear and concise guide to recommended vaccines, updated for the fall of 2024. For people with neuromuscular conditions, this is especially important because: Falling… Read More »
Mighty micro RNAs
by Yi-Wen Chen, PhD, Children’s National Hospital, Washington DC Many Nobel Prize-winning discoveries have contributed to the advancement of research and treatments for facioscapulohumeral muscular dystrophy (FSHD), and the work… Read More »