by Kathryn Wagner, MD PhD I lost my dear friend, Lilleen Walters to FSHD in August. Lilleen and I met approximately 20 years ago when she and her young son,… Read More »
Remembrance of Lilleen Walters
Why put off getting hearing aids?
They’re now more affordable and available by Richard Holmes, Sandwich, Massachusetts If you’re straining to hear what people say, or find yourself cranking up the volume on your TV to… Read More »
It’s alive! It’s alive!
A space-age solution for eating soup by Amy Bekier, San Diego, California Hello, my fellow slurpy, sloppy FSHD superhero eaters! For many of us with FSHD, as our hands, wrists,… Read More »
Muscle loss with Ozempic® and similar drugs
What’s the risk to people with muscular dystrophy? by Rich Holmes, Sandwich, Massachusetts Heard about Ozempic, Mounjaro®, and related drugs and wonder if one might help you lose weight? That’s… Read More »
FSHD is not for cowards
There was plenty of ingenuity and grit on display in Denver by June Kinoshita, FSHD Society Many scientists who work on FSHD spend their days bent over test tubes and… Read More »