Big news! We’ve teamed up with the online fundraising platform Omaze to give you the chance to meet Dan Levy, of Schitt’s Creek. Dan is the co-creator and star of… Read More »
Meet Dan Levy of Schitt’s Creek!
Patient-Focused Drug Development Meeting for FSHD
The FSHD Society announced today that the U.S. Food and Drug Administration (FDA) has approved its application to hold an externally led Patient-Focused Drug Development (EL-PFDD) meeting on facioscapulohumeral muscular… Read More »
A coloring book for the mobility challenged
Coloring books are no longer just for kids. They are a hot trend for adults who find that coloring between the lines is a relaxing, creative outlet in our ever-more… Read More »
New genetic test being developed for FSHD
From Globe Newswire Bionano Genomics, Inc. (NASDAQ: BNGO), a life sciences instrumentation company that develops and markets the Saphyr® system, a genome imaging platform for ultra-sensitive and ultra-specific genome-wide structural… Read More »
Dyne Therapeutics to support ReSolve study of FSHD
From BusinessWire Dyne Therapeutics, a biotechnology company pioneering targeted therapies for patients with serious muscle diseases, today announced its support for the ReSolve study, an ongoing natural history study designed… Read More »