Have you thought about what you can do in your own backyard to serve FSHD patients and families in your community and advocate for greater awareness and resources to develop… Read More »
How to launch your own chapter or Walk & Roll [VIDEO]
A surprise $50K gift
From a simple act of kindness When Jim Chin, chair of the FSH Society board of directors, donated funds for travel scholarships so that 20 patients could attend our 2018… Read More »
Everything you ever wanted to know about FSHD
(but were afraid to ask) There’s no doubt that facioscapulohumeral muscular dystrophy is a complicated condition. The challenge of pronouncing it correctly is a piece of cake compared to the… Read More »
Tips and tricks for getting up after a fall [VIDEO]
Check out this video by an occupational therapist demonstrating a variety of ways to get up off the floor after a fall. These require having some strength and might not… Read More »
European centers to collaborate on FSHD ReSOLVE study
Three European centers have agreed to collaborate with the FSHD Clinical Trial Research Network on its NIH UO1 grant-funded projects, notably ReSOLVE. In doing so, they join eight US members… Read More »