Yesterday, FSHD Society President and CEO gave a special webinar to update our major stakeholders on the progress of the Therapeutic Accelerator initiative and answer their questions. We’re delighted to… Read More »
An update from Mark Stone [VIDEO]
Finding FSHD: the story of DUX4 in a zebrafish
by Amanda Hill, Highlands Ranch, Colorado When studying human disease and working to develop treatments, researchers typically perform experiments on animal models that represent the disease in a controlled laboratory… Read More »
Surgery fixed my eye problems
by Nikki Young, Clarksburg, Maryland Like many others with FSHD, I have suffered from dry eyes. Weakness in the muscles around my eyes prevented me from closing my eyelids fully,… Read More »
Fulcrum Acquires Global Rights to a Potential Disease-Modifying Therapy for FSHD
From Fulcrum Therapeutics press release. Fulcrum plans to launch a Phase 2b clinical trial in FSHD in mid-2019 CAMBRIDGE, Mass., April 23, 2019 – Fulcrum Therapeutics, a biotechnology company focused… Read More »
$100,000 matching gift challenge!
The time to act is now If we deliver on our promise to have therapies to our families by 2025, it will be because of your donation today. With your… Read More »