TikTok, the video-sharing app formerly known as musical.ly, is the world’s fastest growing social networking platform. This year, TikTok is participating in World FSHD Day on June 20th. The relationship… Read More »
TikTok to participate in World FSHD Day
FSH Society Releases White Paper on Clinical Trial Readiness
New publication details findings from an industry collaborative workshop on facioscapulohumeral muscular dystrophy The FSH Society today announced that it has published a report on its recent workshop with government… Read More »
“Universal Design” is Smart Design
It makes living easier for everyone by Jane Earl, Madison, Wisconsin I am 66 years old, with FSH muscular dystrophy, and live with my 82-year-old husband, Tony Earl, in a… Read More »
Webinar: Stance-control braces
Saturday, June 8, 2019 2:00 pm – 3:00 pm Our Connecticut chapter director, Kathy Senecal, wrote in our newsletter about how this type of leg brace made a difference in her… Read More »
Helping a songbird find her voice
Two weeks ago, we told you about the surprise $50,000 donation to the FSH Society in honor of Ann Blake. Now we learn in this heartwarming video that Blake did… Read More »