Check out this video by an occupational therapist demonstrating a variety of ways to get up off the floor after a fall. These require having some strength and might not… Read More »
Tips and tricks for getting up after a fall [VIDEO]
European centers to collaborate on FSHD ReSOLVE study
Three European centers have agreed to collaborate with the FSHD Clinical Trial Research Network on its NIH UO1 grant-funded projects, notably ReSOLVE. In doing so, they join eight US members… Read More »
An update from Mark Stone [VIDEO]
Yesterday, FSHD Society President and CEO gave a special webinar to update our major stakeholders on the progress of the Therapeutic Accelerator initiative and answer their questions. We’re delighted to… Read More »
Finding FSHD: the story of DUX4 in a zebrafish
by Amanda Hill, Highlands Ranch, Colorado When studying human disease and working to develop treatments, researchers typically perform experiments on animal models that represent the disease in a controlled laboratory… Read More »
Surgery fixed my eye problems
by Nikki Young, Clarksburg, Maryland Like many others with FSHD, I have suffered from dry eyes. Weakness in the muscles around my eyes prevented me from closing my eyelids fully,… Read More »