by Susan Aumiller, Powell, Ohio Last year, soon after my son and husband were diagnosed with FSHD, I called the FSH Society and said I’d like to organize a fundraiser…. Read More »
Organizing a Walk & Roll ─ if I can do it, so can you!
Gear up for World FSHD Day 2019!
Sharpen your orange slicers and polish your selfie sticks! World FSHD Day is on June 20th and you can help us turn social media world orange on that day by… Read More »
Mountains to climb
by Neenah Williams, Colorado Springs, Colorado I was diagnosed with FSH muscular dystrophy at the age of 16. I am now 27 years old and have started to feel more… Read More »
The time is now…
In a world awash with billion-dollar profits for drugs to treat the most common ailments ─ hypertension, acid reflux, diabetes, high cholesterol, and so on ─ patients with FSH muscular… Read More »
My journey continues
by Ian Rys, Port St. John, Florida When I turned 50, I began to feel I was moving and walking differently. I won’t lie: That scared me. I’ve always tried… Read More »