Here are the agenda, speaker biographies, and presentation materials from our Miami FSHD Family Day Conference, which was held on Saturday, February 23, 2019, at the beautiful Newman Alumni Center… Read More »
Miami FSHD Family Day Talks
FSHD Society Radio with Ben Livingston, neon artist
Join FSHD Radio via Facebook Live on Wednesday, March 27th, at 8:00 pm Central / 9:00 pm Eastern time for our live interview with Austin-based artist Ben Livingston. Ben drew… Read More »
The 11-step challenge
At the close of 2018, two adventurers accomplished what heretofore was thought impossible – they each traversed Antarctica solo, unaided, on foot. One of these intrepid souls, Louis Rudd, when… Read More »
Bay Area FSHD Family Day Conference
Register here! Join us on Sunday, April 28, for our Bay Area FSHD Family Day conference. It will be held from 1:00-6:00 pm at the beautiful Li Ka Shing Center… Read More »
Industry collaborative workshop on FSHD clinical trial readiness
Yesterday, the FSH Society convened a landmark meeting at the Tommy Douglas Conference Center, a stone’s throw from the headquarters of the Food and Drug Administration (FDA). Several FDA regulators… Read More »