Tips and tricks: Putting on a jacket When you are in a wheelchair and can’t raise your arms, putting on a jacket can be a contortionist’s conundrum, even with the… Read More »
Tips and tricks: Putting on a jacket
Giving a piece of me for research
by HILARY A. C. HOOVER, Ocala, Florida I tested positive for the FSHD gene and am currently asymptomatic. Due to my status, I was asked to donate muscle tissue via open… Read More »
Fighting for life insurance
Excerpt from Howard Chabner‘s forthcoming FSHD Autobiography: I tried to find life insurance but brokers told me I was uninsurable because of my FSHD. Finally, one broker found a company… Read More »
Tips and tricks: STABILicers light ice cleats
Avoiding falls is especially challenging in cold winter climates, where even the most careful walker is no match for a patch of ice. Several of our members swear by strap-on,… Read More »
A modern take on muscular dystrophies
Here’s a very interesting post on Psychology Today by Jennifer Jo Brout, PsyD, about the need to raise public awareness around specific muscular dystrophies in the age of genomic medicine…. Read More »