Join us via Facebook Live on Wednesday, January 30th, at 8:00 pm Central / 9:00 pm Eastern time for our live interview with two people from the Chicagoland area who… Read More »
FSH Society Radio – Two perspectives on living with FSHD
Webinar on swallowing and speech in FSHD
Wednesday, February 13, noon to 1:00 pm EST. Register here We are delighted to bring to you this live webinar with Kiera Berggren, a research speech-language pathologist (SLP) in the… Read More »
Cure FSHD? Now is the time!
We can do more than simply aspire to a treatment in some undefined future. We are confident that, with your continued support, we will have treatments for FSH muscular dystrophy… Read More »
Peace Joy Gratitude
You’ve made a difference and we are grateful As the year draws to a close, all of us at the FSH Society wish you Happy Holidays and thank you for… Read More »
An urgent call to action
This year-end webinar by FSHD Society CEO Mark Stone is a must watch. He lays out our detailed strategy that will get treatments for FSHD to our families by the… Read More »