Filmmaker Taylor Toole takes us inside the world of Lexi Pappas, a fellow documentarian who lives with a condition called facioscapulohumeral muscular dystrophy (FSHD). Last year, Lexi’s own documentary about… Read More »
Lexi Pappas’ story of filmmaking and FSH muscular dystrophy
The use of antioxidants in FSHD
What is the scientific rationale and what does the evidence show? by Adam Denny, PhD In recent years, scientists around the world have begun to investigate the role of oxidative… Read More »
Ghostly Gala laughter for a cure
Our 2018 Ghostly Gala, held on October 21 at Los Angeles’ fabled Cicada Club, raised awareness and funds for FSH muscular dystrophy. This year’s theme was comedy, laughing for a… Read More »
The future is in powerful hands: YOURS
“I have been impressed with the urgency of doing. Knowing is not enough. We must apply. Being willing is not enough. We must do.”―Leonardo da Vinci Throughout 2018, we have made… Read More »
FSH Society latest grant awards
By Daniel Paul Perez & June Kinoshita One of the blue-sky dreams for those of us working toward treatments for FSH muscular dystrophy is regenerative therapy—treatments to generate healthy muscles… Read More »