The field has made astonishingly fast progress by Charis Himeda, PhD, University of Nevada, Reno Nearly 150 researchers, clinicians, patients, and industry partners convened at the FSH Society’s 2018 International Research… Read More »
The 2018 FSHD International Research Congress
FSH Society Launches Nationwide Signature Walk & Roll Event
Today, The FSH Society, the world’s largest research-focused patient advocacy organization for facioscapulohumeral muscular dystrophy (FSHD), announced that it has established its first-ever nationwide signature event, the Walk & Roll to Cure… Read More »
Spotlight: Skylar Conover
Ms. Wheelchair USA 2015-2016 By Nicky Williams Dexter [box] A message from Nicky about the Spotlight series: “Feeling connected to others living with FSHD has been a blessing to me… Read More »
Mid-Atlantic FSHD Family Day registration is open
The preliminary agenda and registration are now available for our first Mid-Atlantic FSHD Family Day Conference. It will be held in Baltimore, MD. Co-organized with Kathryn Wagner, MD PhD, and… Read More »
$1.2 Million MDA grant awarded to FSHD Clinical Trial Research Network
When the FSH Society made its initial grant award in 2016 to help establish the nationwide FSHD Clinical Trial Research Network (CTRN), we expected the network would be able to… Read More »