by LEIGH REYNOLDS, Kansas City, Missouri When we began planning for the inaugural Walk & Rolls to Cure FSHD, a $105,000 fundraising goal felt ambitious. Then an incredible group of volunteer… Read More »
Inaugural Walk & Roll Campaign a Tremendous Success!
High-intensity exercise training in FSHD
by Amanda Hill If you or a loved one is affected by FSHD, or any muscular dystrophy for that matter, chances are that you’ve heard it’s best not to exercise,… Read More »
DUX4 vs. PAX7–Who’s the fairest one of all?
by Amanda Hill For several years, DUX4 has enjoyed center stage in the yet-unfolding story of facioscapulohumeral muscular dystrophy (FSHD). DUX4 was first identified in 19991, but only in the… Read More »
And the new ICD-10 code for FSHD is…
The new ICD-10 code for Facioscapulohumeral muscular dystrophy is G71.02. The International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) is a system used by physicians and other healthcare providers… Read More »
Lexi Pappas’ story of filmmaking and FSH muscular dystrophy
Filmmaker Taylor Toole takes us inside the world of Lexi Pappas, a fellow documentarian who lives with a condition called facioscapulohumeral muscular dystrophy (FSHD). Last year, Lexi’s own documentary about… Read More »