Because if not us, then who? by Deborah Schwartz, New York City I was clinically diagnosed with FSHD two years before the FSH Society came into being. Mine is a spontaneous… Read More »
Why I made the FSH Society a beneficiary in my will
Walk & Roll to Cure FSHD is coming next month!
by Beth Johnston and Leigh Reynolds, FSH Society Our first nationally branded event, the Walk & Roll to Cure FSHD, will take place in September and October 2018. This new, signature… Read More »
An update on early-onset FSHD
A review of published studies to improve our understanding by Amanda Hill, Highlands Ranch, Colorado As many as 20 percent of patients with FSHD have an “infantile” or “early-onset” form, which… Read More »
Me and my cowboy boots
From the department of silver linings by Jeff Gibler, Humble, Texas When I was a kid we would come to the United States during the summer to visit my paternal grandparents… Read More »
Managing breathing issues
Notes from our webinar with John Bach, MD by June Kinoshita, FSH Society The best practices for managing breathing issues were the subject of the June 19, 2018, FSH Society webinar… Read More »