Download the FY 2017 Donor Report here Amazing! That’s the word that comes to mind when I look back on 2017 and reflect on all that has been accomplished as… Read More »
FY2017 Donor Report documents a year of change and growth
$133,254 awarded to FSHD Clinical Trials Research Network
The FSH Society has awarded a grant for a second year of support for the FSHD Clinical Trials Research Network (CTRN), through the coordinating center based at the University of… Read More »
Rare Disease Day Rare Talent Challenge
This year, to celebrate Rare Disease Day, taking place on Wednesday, February 28, we will be hosting a viral photo and video challenge! Share your rare talents and help us… Read More »
FSH Society awards $690,894 in new research grants
A drug that helps muscles grow and regenerate. Molecules that occur naturally in our cells to repress DUX4, the “toxic gene” thought to cause FSHD. A deeper dive into why… Read More »
FSH Society Talk Radio with Dr. Tahseen Mozaffar
Join us on Wednesday, February 28, 2018, at 9:00 pm EST. Listen live on BlogTalkRadio, or listen and ask questions on the air by calling (949) 270-5953. On this episode of FSH Society… Read More »