By FSH Society Ambassador Trisha Sprayberry I’m sure everyone knows about the ALS ice bucket challenge: folks dousing themselves with icy buckets of water for ALS. This campaign took off nationally with… Read More »
Be an Advocate to #CureFSHD
Become involved with our FSHD Be Strong Campaign!
Want to see a shirt that will knock your socks off? In addition to style, for every shirt or sweatshirt sold, 100% of the profits goes back to the FSH… Read More »
National Pro Grid League supports the FSH Society
The National Pro Grid League (NPGL) announced today that it has selected the FSH Society as a beneficiary of its charity program. The men and women athletes in the NPGL,… Read More »
“I decided to fight back”
By Russell Caratenuto, FSH Society Ambassador As a child I never second-guessed my ability to stick out my shoulder blades and make what my friends would call “wings”. This difference… Read More »
Carden Wyckoff on Living with Muscular Dystrophy
FSH Society Ambassador Carden Wyckoff recently created a series of posts on Avelist regarding misconceptions and living with FSHD. Below is her latest post on living with muscular dystrophy as… Read More »