A positive and enthusiastic event for the FSH Society was held last night! A big thank you to Russell Caratenuto, his coach and team for spreading more awareness about the… Read More »
An incredible night for FSHD thanks to Russell and the East Brunswick High School Boys Volleyball Team!
Volleyball fundraiser
By Russell Caratenuto III This May 6, I’m organizing an FSHD fundraiser with the East Brunswick High School boys volleyball team in order to raise awareness for FSHD. As I… Read More »
Bone Health in FSHD–What do I need to know?
Special talk by Dr. Carla Grosmann from the Kennedy Krieger Institute Mid-Atlantic Patient Meeting Saturday, May 2, 2015. Noon-3:00 PM Will be live streamed over the FSH Society’s YouTube channel. Bone… Read More »
The Tale of the Piggy Back Spartan Race
Re-posted with permission from Spencer Wyckoff Before the Race Three ordinary people set out toward the Georgia International Horse Park on Saturday March 7, 2015 around 7:00am. Our bellies were full of… Read More »
April patient meetings from coast to coast
Are you eager to meet other patients and learn about the latest research? Several meetings are being planned for next month. Find out if there’s one near you: April 12, 2015… Read More »