We are so excited and proud to see Tim Hollenback, host of the FSHD Society talk radio show, featured by Milwaukee’s 10thirtysix news program last night. In this segment, we… Read More »
Tim Hollenback on Milwaukee’s PBS [VIDEO]
CBD and medical marijuana [VIDEO]
Here are the slides and the recording from our webinar with Jennifer Bernstein on CBD and medical marijuana. With the spread of legalized medical marijuana and the passage of the… Read More »
Disappointing news from Acceleron
From Acceleron’s press release Acceleron Pharma Inc. (NASDAQ:XLRN), a leading biopharmaceutical company in the discovery and development of TGF-beta superfamily therapeutics to treat serious and rare diseases, today announced that treatment… Read More »
Mika Mae’s story
Editor’s note: Mika Mae Jones passed away in June 20, 2019, at age 32 after sustaining severe head trauma from a fall. The FSHD community mourns her tragic loss. She… Read More »
Webinar: CBD and medical marijuana
Our next webinar, scheduled for Wednesday, September 11, from noon to 1 PM EST, addresses a topic that is much discussed in our Facebook communities: cannabidiol (CBD) and medical… Read More »