Contributed by MORGAN HOFFMANN West Palm Beach, Florida In November 2016, I was diagnosed with muscular dystrophy, an incurable disease. The last few months have been the most trying of… Read More »
Pro Golfer Morgan Hoffman’s FSHD diagnosis leads him to a higher calling
Accessibility Hack: Sandals for the shower
Shared by ANTHONY MANNUZZA, Woodhaven, New York Living with FSHD has caused great difficulty for me in keeping my balance. I’m sure you’ve heard this many times from others who have… Read More »
FSHD Connect pre-conference workshop: A Mindful Way through FSHD
Flamingo Las Vegas, Carson City ballrooom Saturday, June 9, 2018 9:30-11:00 AM PST An experiential workshop for patients, family members, and friends for managing stress, illness, and disability. This is… Read More »
Seeking nominations for 2018 FSH Society Community Award
The FSH Society is soliciting nominations for its 2018 Community Award, for an individual or group that has been an outstanding contributor to the FSHD community. Given every two years,… Read More »
Webinar: Psychological interventions to improve well-being in muscle diseases
https://www.youtube.com/watch?v=s67L70Acul4 Note: The video will be posted only until May 31, 2018. Download Chris Graham’s Slide Deck. In this talk, focusing mostly on his group’s work in muscle disorders, Chris… Read More »